All posts in the Uncategorized category

Kt yr3 1000m cross country.

Published September 30, 2016 by Caitlin Rose

Now this IS a Kt milestone. She worked super hard for this!! 8 weeks after her Calf tendon lengthening operation (PERCs) with DR Dobbs in St Louis, Caitlin has completed her school’s annual cross country challenge. She was so determined. We trained for this running after school when her schedule allowed and inspired by our Paralympians this summer.

We are so proud. x

12 days post PERCS…

Published August 7, 2016 by Caitlin Rose

So we are back in the UK after a troublesome trek via Atlanta. Despite our luggage not being here yet, jet lag tiredness and getting used to high splints, Caitlin has the energy to do some physio play with me. 

It’s largely for this reason that Dr Park’s SDR and Dr Dobbs’ PERCs are really successful with children; the child’s energy propels their recovery and gain so greatly.

Go honey chil’ 🤗

StL 2016 – The Business end. Kt DAY 8 POST GASTROC RECESSION with Molly

Published August 4, 2016 by Caitlin Rose

Caitlin has weathered tummy pain over the past week here in St Louis. It’s meant sleepless nights and numerous toilet trips. Throughout, she’s admirably continued her daily physio therapy schdule despite the discomfort. 

Today the meds kicked in and she felt a good deal better. Her balance, strength and work rate were all greatly improved. Molly took her from treadmill to balance work and Caitlin did not disappoint. Well done little lady xx.

Dancing after Selective Dorsal Rhizotomy

Published July 8, 2016 by Caitlin Rose

This is what Caitlin Rose has been able to achieve three years after her SDR. She’s very proud of her achievements and we love her stamina and energy. Well, most of the time. As I write this she’s bouncing on our bed making it a bit difficult to type. 🙂

Special thanks to Dr TS Park again. We remain ever grateful.

Two years in the making …

Published October 8, 2015 by Caitlin Rose

kt kj with ailsa the jubo rabbitkt bouncing high

As you all know, Caitlin is doing well. This entire 2.5 year blog defines her bravery and stubbornness – intrinsic factors in her progress. We don’t take this progress for granted; tomorrow, she may decide not to take the next steps we’d like her to! Her ‘do it myself’ attitude is a constant companion.

As of 26 September 2015, it’s two years since we were waiting for four year old Caitlin to emerge from SDR surgery theatre with Dr Park and the team at St Louis Children’s Hospital (SLCH). Now six years old, Caitlin has kept moving on. Intricate discussions we had with the school regarding classroom and playground access seem quite distant memories. The wheelchair we had acquired for this phase of her life remains in garage storage collecting cobwebs. Meanwhile, Caitlin’s busy collecting miles: she scoots to and from school, jogs the block with her Dad, has started swimming, trampolines and hopscotches the supermarket aisles between hide and seek.

Along with these skills, Caitlin becomes more aware of her small extra physical needs; perhaps falling over a bit more than other children, or maybe not climbing things as fast. Returning home from school recently, she sobbed a little and wailed “oh why are my legs so weak?” Mum and I had been preparing for such times but it still caught us by surprise; six year olds don’t do conversational lead-ins. Hugs, listening and a focus on her ‘can-do’ attitude seemed to be what she needed this time but we’ll expect more occasions like this. Last week or so was school cross country day and the caring teachers may have underestimated her capabilities a bit too much! She’ll be itching to show them her abilities next time.

Next year may see us returning to Dr Park’s team as a review is overdue. Our aim has always been long term benefit accrual for Caitlin with tweaks where necessary along the way.