All posts tagged Caitlin

A year post SDR!

Published September 27, 2014 by caitlinroseford

A year ago Dr Park and his team at St Louis Children’s Hospital gave Caitlin and us the best gift ever – the gift of better posture, greater mobility and improved stamina.
I asked friends to comment on any progress they’d observed and this is what they said:
Louise Palmer
To see her RUN into my arms on Sunday was Amazeballs! She’s a little firecracker!! Xxx
Tania Younkin
I can’t believe it’s been a year! Congrats on all her successes!
Debbie Thomas
Every time we see the infant Dancefuzion group I think how awesome Caitlin’s journey is – to see her perform at the summer fete was such a brilliant achievement.
Jane Speller
Caitlin isn’t defined by mobility issues. She’s running, climbing, being contrary sometimes (!) and blossoming. Seems to me that SDR gave you all hope before the op and a year on it’s giving her wings. She’s independent & strong. And gorgeous. Obviously xxx
Louise Burrow
Well I know I can’t keep up with Caitlin in the playground! She runs rings round me! Amazing progress and wonderful to have been witness to it. She is a true inspiration x
Sarah Ellis
She’s amazing and has handled the challenges of the last year passion and i know you all must be very proud x
Georgina Kelly
Caitlin is an absolute superstar! The way she has achieved every goal is more than impressive, and she does it all with a cheeky grin. Brilliant girl! Xx
Paula Bradley
Watching her when we came up in the March and then seeing her in videos on her since she continues to amaze me with her determination and achievement x x
Joanna Wilson
I see her running to school most days
Iris Naudeer
It has seemed that she had met and surpassed any challenge set to her , she’s shown courage, she’s been brave and she’s proved what sheer determination she has and look at just how much she had achieved!! Wonderful beautiful fearless Caitlin xxx
Anne-Marie Loots
I don’t see Caitlin very often but I’m always amazed by her determination & resilience & the proof is in the videos you post. X
Helen Daykin
Caitlin is an amazing little being. Her confidence, stubbornness and positive attitude has helped her to make the giant steps in progress that she has made in the last year, on the back of her wonderfully successful operation. I love to see her latest achievements each time we catch up – running, hopping, skipping, dancing – and she is proud of them and always practising to get even better. She inspires us all. Xx
Caitlin’s self-appraisal: “I can run faster, jump higher and hop”
Our only regret is that Caitlin’s beloved granny is no longer with us to share the celebration, not least because her love and care prepped Caitlin so well for the challenges that lay ahead.
1/3 way through the rehab schedule. Woo hoo ๐Ÿ™‚

Homeward bound

Published October 20, 2013 by caitlinroseford

So we were sitting in the foyer at the hotel waiting for the taxi to take us to the airport and suddenly Caitlin just went for it. She walked at least 40 steps! She’s been so frightened to do it & we were feelin a little exasperated as we knew she could do it. Dr Park predicted she would walk before we returned home and he was right!
Caitlin now needs to build strength and confidence so that she can walk independently in all environments and have the stamina to cope with a full school day. This is where her UK physiotherapists come in. Judith & Lucy are great with Caitlin & have supported us in our quest to help Caitlin have a better future. We feel rather lucky about that as some families have not been supported by their healthcare teams. Caring for a physically disabled child is hard work and families need support and guidance.
Caitlin was very pleased with herself and showed off her walking to the ladies working at the front desk. I am so happy now that I’ve seen her so this. Irwin knew she would do it once we stopped putting pressure in her & it seems he was right. Grrrrr! ๐Ÿ™‚

Dance determination

Published February 3, 2013 by caitlinroseford

Caitlin has been turning her thoughts to dance recently and can be found wiggling her bottom to the odd soca calypso sound or throwing a few shapes to her favourite pop songs (you know, the ones that generally jar daddies across the nation). Already mastering the basic sidestep, Caitlin continues to push her physical boundaries. ย She has also been teaching herself to jump without assistance. We keep pinching ourselves as it was only a year ago that she took her first lunging steps across the living room aged 2.5.

Her mum has stepped up her stretching as we strive to prepare as best we can for her operation currently pencilled in for August/September 2013. Our thinking is that if she goes in as good as she can be she will get the best out of her post op physio. Only tonight (last night now) she was on the ‘power plate’ in the living room. Her arm and shoulder strength is so good that she can hold the wheel barrow position with the plate going and her legs in the air for a considerable time. And very proud she is of it too! We are hopeful that once this strength is allowed to redistribute across the underused muscles with the removal of the tone, she will be off to a flyer in rehab.

Mum has also been busy focusing attention on acquiring a Statement of Special Educational Need (SEN). Although Caitlin is a capable diplegian, In a school of bustling kids of all ages and without the protective teacher to pupil ratio that her nursery supply extremely well, she would be exposed to constant accidental physical threat due to her balance. Beyond this there are other safety concerns such as who is responsible for her evacuating the building in case of fire? Such issues would not be fully covered by the School Action Plus (SA+) 15 hours of extra care she might receive as standard without the full SEN in place.

Caitlin will be attending the 2013 SDR party mid March in Daventry where we are sure she will be eager to show off whatever her latest trick is!